What she has to say is pretty important if you know someone with Cancer.
She was given a death sentence years ago and her options were Chemo and die in months anyway or try and find another route. Both her parents are Medical Doctors BTW. She is not cured as she is riddled with Cancer but what she has is an active and extended life years beyond what anyone would have expected. For others with less aggressive or advanced Cancer there are better results.
"I am sending this email because so many people have asked me about Immunepheresis, the treatment in Germany that has kept me alive against the odds in spite of a terminal metastatic cancer diagnosis. Please forward it to anyone you know in case it helps someone who has cancer to explore an additional medical treatment option.
I have been toying with the idea of becoming visible as an advocate for this treatment, after all, I am not the doctor in charge, and I am not able to speak for the medical side of things, but because of the way I feel, the happiness I'm experiencing, the 'extra time' that I know I have recieved, the physical strength, the power to be still here engaged with raising my kids, being with friends and family and doing my work in the world, I am compelled to share my story, and if it extends even one persons life, it will have been worth it.
My clear intention in writing this is to be of service to humanity by being living proof that Immunepheresis works. And the more who know about it (like dialysis in the 50's before it went mainstream) the more can avail of it. I would love to see it available as an option under my medical insurance and part of what's on offer in hospitals locally. Some American patients attending the clinic have had the costs reimbursed by their insurance companies so it is heading in the right direction.
Imagine knowing, despite a cancer diagnosis, that you were not necessarily done for. That you could change your mind, open your heart, and engage in a medical treatment that uses the power of your own immune system to seek out and kill cancer cells wherever they are in your body? This is my experience of this metastatic cancer: a manageable health condition, not an immediate death sentence.
Right now as I write, coming into the summer of 2011, I am feeling healthy and well. I have a few aches and pains, but they are in the background. This is in stark contrast to the very poor prognosis I faced in december 2008 when I was told of the extent of my metastatic breast cancer. I sincerely doubt that I would be still here physically had I not had the option of Immunepheresis treatment, and I am very grateful that I and my family came to know about it when we did. It was just in time.
Here's how I started off. After the metastatic diagnosis I was exploring options, researching treatments and the efficacy of all the known modalities on my type of cancer. One of my Doctors told me that chemo wasn't known to cure bone metasteses and while we could use radiation for pain, it didn't cure the cancer. I'd done chemotherapy in 2002/3 and it was very tough. I wasn't interested in using up the rest of my life in chemo induced sickness when it was known to be ineffectual. The chance of achieving my current outcome was nil using conventional options. I kept searching, prepared to choose no treatment and to play out my life without subjecting my body to a chemical assault if something better than chemo didn't show up. I found out about Dr Lentz's treatment from a few sources simultaneously in a series of synchronistic events. My family, who include doctors and scientists, researched it and we decided to go with it.
There is a new website about Innumepheresis which was not there when I was first diagnosed and treated: http://immunologyfoundation.org/. It describes the treatment protocol and methodology in detail.
The first three treatment cycles were 12 tx days spread over three weeks with a break of about 10 days in-between. We measured results with CT scans. They showed clearly that the treatment was working. Currently, I typically go over there for a 5 day maintenence treatment around every 2 months. I have come such a long way since my original diagnosis; the tumors that were seen in my liver, lungs, omentum, hip, sacrum and thoracic spine have shrunk (lung, liver), disappeared (omentum), and in the case of the bony 'litic' lesions (which made a hole rather than a growth), are healing over with the type of sclerotic new bone that you'd see in a CT scan of a healed break or fracture. All in all I feel great and feel that while I continue to do this treatment, I will stay alive and be able to enjoy life fully between cycles.
Over two years have passed from that terminal diagnosis. I and my doctors in Ireland have noticed some important things: I am very much alive (contrary to all expectations), pain is minimal (again, contrary to all expectations) and joy is maximal. Life is stretching out in front of me, a gift: the present! The tumor burden has diminished considerably and as this cancer is immunoresponsive, should continue to regress while I continue to recieve the treatment at intervals of about 2 months.
The bottom line for me is this: I felt I wouldn't survive chemo again with it's inherrent challenge to the immune system and I am glad I risked trying Immunepheresis because I am most definitely surviving it! I feel now that I am living with cancer rather than dying from it, managing it as a chronic condition, slowly but surely shrinking tumors and healing bones. Dr Lentz is continuously working in his research lab for that next step: after shrinking it to nothing, to find the "off button" so it does not return. I am holding the vision for that. Staying alive for long enough.
If you feel that any of this story would inspire or help someone researching treatment options, please forward this email to them. Anyone is welcome to get in touch with me anytime for a patient's perspective. Please put immunepheresis in the subject if you're emailing or adding me as a skype contact so that you don't go to my spam bin. Thanks.
Of course the best person to call about Immunepheresis is Dr Lentz himself, so I include the clinic contact details below. Dr Lentz operates Praxis Lentz with his wife Dr Kiran Lentz and a highly trained nursing and support staff. Everyone at the clinic speaks fluent english.
Tel.: +49 8051 968482
Fax: +49 8051 968448
The more who know about this treatment the better I think. Please give others the information, let them add it to their options. It may come just at the right time for them too!
In addition to my physical treatment, those who know me will be aware that I use tools from a course that I teach called The Avatar Course. I continue to study and practise this material every day and am managing this creation of cancer in my life with gratitude, appreciation and love for the insights that it brings, and a fearlessness that I would be glad to share if anyone is interested. Just ask.
I sign off now, with much love and many good wishes for your continued health and happiness. I trust that you will be in touch if I can help!